A Patient-centred approach to understanding the barriers to ACcessing and Engaging with asthma care (PACE) (ID 520)
University of Leicester
Abstract
Background: UK asthma outcomes for children and adults are poor. Patients often miss review appointments and/or take their asthma preventer treatment infrequently. Little research has been published exploring the reasons of poor engagement with asthma services.
Aims: The overarching aim of the PACE programme is to improve asthma outcomes by designing and evaluating services that meet patients’ needs and preferences.
Methods: The study objectives were developed with patients.
WP1: Rapid realist review to derive the context and mechanisms that could improve engaging and accessible asthma care. We will establish patient and professional Expert Panels to support the iterative process.
WP2: Using routine primary care data from Clinical Practice Research Datalink Aurum linked with deprivation status and Hospital Episode Statistics (in England), we will describe factors associated with evidence of poor engagement with asthma services. Iteratively with the qualitative work, we will identify ‘markers’ that reflect engagement with healthcare services.
WP3a: From three demographically diverse UK areas (Leicester, Scottish Highlands, Swansea), we will recruit underserved and hard-to-reach adults, young people and parents of children with asthma. Interviews will explore barriers/enablers to engaging with asthma care.
WP3b: We will explore the perceptions of primary/secondary/tertiary healthcare professionals, and healthcare manager/commissioners on the challenges of providing patient-centred engaging asthma services.
WP4: In discussion with patient and professional panels, we will triangulate the findings from PDGs-1/2/3 to identify key components of an asthma care service that encourages engagement and improves accessibility.
Progress made: The protocol has been submitted to the REC, study start date 1st May 2024
On-going challenges: 1. Underserved populations may be hard to engage in research. 2. Small ethnic minorities may be hard to reach due to language barriers. 3. Health care practitioners may be reluctant to explore reasons why services are not engaging.
Funding: NIHR Programme Development Grants for Applied Research
Conflicts of interest: none
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